Turkish Journal of Gastroenterology
Gastrointestinal Tract - Original Article

Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

1.

Department of Pediatric Surgery, Faculty of Medicine, Hacettepe University, Ankara, Turkey

2.

Hacettepe University, Institute of Public Health, Ankara, Turkey

3.

Department of Pediatric Surgery, Faculty of Medicine, Istanbul Medeniyet University, Istanbul, Turkey

4.

Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

5.

Department of Pediatric Surgery, Hannover Medical School, Hannover, Niedersachsen, Germany

6.

Department of Pediatric Surgery, The Queen Silva Children’s Hospital, Gothenburg, Sweden

7.

Department of Pediatrics, University of Gothenburg, Institute of Clinical Sciences, Sweden

Turk J Gastroenterol 2021; 32: 640-650
DOI: 10.5152/tjg.2021.201005
Read: 69 Downloads: 31 Published: 09 April 2021

Background: This study reports the feasibility, validity and reliability of the Turkish versions of the Esophageal-Atresia–Quality-of-Life (EA-QOL) questionnaires, which were originally developed in Sweden and Germany. 

Methods: After translation from Swedish to Turkish and cognitive debriefings, 51 families of children aged 2 to 7 years (parent-report, 17-items) and 54 families of children 8 to 17 years (child and parent-report, 24-items) responded to the EA-QOL questionnaires and a validated generic HRQOL-instrument (PedsQL4.0). Medical records of patients and questionnaires were used to obtain clinical data. The Turkish version of the EA-QOL questionnaires were evaluated for feasibility (<5% missing item responses), reliability (internal consistency/retest reliability for 3 weeks) and validity (known-groups/concurrent/convergent). Level of significance was p<0.05. 

Results: Feasibility of the Turkish version of the EA-QOL questionnaires was good. Internal consistency of all scales was satisfactory, as were the level of agreements of EA-QOL scores between the field- and retest study. Known-group and concurrent validity were achieved since the EA-QOL questionnaires showed that esophageal symptoms and feeding difficulties were negatively associated with EA-QOL total scores in both age specific versions (child-and parent report), and respiratory symptoms in the version for EA children 2 to 7 years (parent-report). A higher number of respiratory symptoms decreased the EA-QOL total scores in both age groups (parent-report, p<0.05). Correlations between the EA-QOL total scores and PedsQL-4.0 total scores supported convergent validity.

Conclusion: The Turkish version of the EA-QOL questionnaires are feasible, valid and reliable to assess condition-specific HRQOL in EA children. 

Cite this article as: Soyer T, Ece Arslan U, Ulukaya Durakbaşa Ç, et al. Feasibility, reliability, and validity of the Turkish version of the esophageal-atresia-quality-of-life questionnaires to assess condition-specific quality of life in children and adolescents born with esophageal atresia. Turk J Gastroenterol. 2021; 32(8): 640-650.

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